Today’s Quote

“Whatever we possess becomes of double value when we have the opportunity of sharing it with others.” —Audre Lorde (poet).

Jul 4, 2011

Special Olympics 2011

When your family has been touched by someone with special needs I believe that it opens your eyes to see the world a little bit differently.  You start to look at things through THEIR eyes and once again you are aware of the beauty that surrounds you. At the very same time you also want to hold them close and keep them from this world that you know from experience can be a very scary place.

One of the most beautiful attributes that our special once possess is their self confidence. They believe that they have the ability to do anything they want to try, and why would they think anything else?! 

This is why I love attending the Special Olympics.



I think we sometimes forget what are loved ones with special needs are able to accomplish. We are told from the beginning about all the things they will probably never do, places they probably will never go, and the lives they probably will never have. I don’t know about you, but I am constantly being shown that the possibilities are endless if you give them tools they need to achieve their goals.   

(this is a picture of me and one of our Challenger teammates - so excited to see her!)

I apologize I didn’t take very many pictures, but I got caught up and enjoyed the moments I was witnessing rather than trying to get the best shot.  It is difficult to put into words what it is like seeing the smile of someone who has difficulty walking, cross a runner’s finish line.
The athletes of the Special Olympics are truly amazing, and I’m not gonna lie – I probably couldn’t do half of the things they can do . . . okay . . . less than half.  I really think that more people need to attend the Special Olympic Games, to cheer on the athletes, to be a part of something life changing, and to be reminded that anything is possible when someone believes in you.
To learn how you can be apart of The Special Olympics go to specialolympics.org

Jun 22, 2011

Music therapy


What is music therapy?


Music therapy uses music as a powerful tool to create positive behavior changes.  Music therapy can enhance development in areas such as social/emotional, cognitive/academic and fine/gross motor skills. Music interventions are chosen specifically to meet individual developmental goals such as improving hand/eye coordination or increasing verbal skills
 
How can music therapy help a child who has Down syndrome?


Music therapy can be powerful in the life of a child who has DS. Music therapy goals often overlap and reinforce skill areas which are being addressed during the child's other therapies.  The use of music and rhythm can energize and organize a child's environment and encourage the child to participate. Music may also be used to relax a child when an environment becomes over stimulating.


If you would like to learn more about Music Therapy at the DSC be sure to contact them.

Down Syndrome Connection of the Bay Area

101-J Town and Country Drive Danville, CA 94526
Phone: 925-362-8660

Jun 9, 2011

The first model agency representing people with Down syndrome has been launched to coincide with World Down Syndrome Day. 

Some 20 people were selected, aged five to 33, after experts in the business rated their self-confidence in front of the camera. They will be available for photo shoots, advertising, catalogues and catwalk shows as part of the I'm I'm able 2 Model venture, and will be paid similar fees to other models.

Sheila Campbell, chief executive of the Down Syndrome Centre, said people with the disability needed to be better represented.

"For many of us, the experience of interacting with a person with Down syndrome has been increasingly normalised in recent times," Ms Campbell said.

"They are active contributors to communities on many levels and I'm able 2 Model will now provide a platform for them to be portrayed alongside their peers in media representation."

Ireland has one of the highest rates of people with the disability at one in every 500 births, as opposed to one in 1,000 in countries such as the US, Spain and Norway.

The company will be operated in conjunction with 1st Option Model Management, based in central Dublin and headed by Jules Fallon. Ms Fallon said she did not hesitate in getting involved in the project.

"Children with special needs such as Down syndrome have dreams and aspirations just like the rest of us, as do their parents," Ms Fallon said.

"Society no longer has a one-size-fits-all mentality so it's time we started to celebrate that people come in all different shapes, sizes and abilities.

"We are very excited about this project and are looking forward to opening new doors and revenue streams for people with Down syndrome."

Ms Campbell said they have not yet received any bookings but she is confident of business.

May 23, 2011

THE 2011 BOWLARAMA

THANK YOU TO EVERYONE WHO CAME OUT TO EARL ANTHONY’S DUBLIN BOWL FOR THE 2011 BOWLARAMA AND TO THOSE THAT COULDN’T MAKE IT AND PURCHASED RAFFLE TICKETS!

WE NET $3000 ON THE IPAD RAFFLE AND FOR THAT WE ARE TRULY GRATEFUL. AGAIN THANKS TO THE BOARD AND STAFF FOR DONATING THE IPAD.



CONGRATULATIONS TO DONNA CRAWFORD (TJ’S MOM) FOR HAVING THE LUCKY RAFFLE TICKET



IF ANYONE HAS PHOTOS FROM THE DAY… PLEASE SEND THEM TO ME AS AN ATTACHMENT TO AN EMAIL FOR THE NEWSLETTER!



THANK YOU AGAIN!

May 17, 2011

cop-for-a-day

Ryan Creasy, 33, always wanted to be a law enforcement officer like his idol, "Walker, Texas Ranger."
Creasy, who has Down syndrome, stays home with his parents and works in his dad's shop.  On Monday, he left his O'Fallon home and learned what it felt like to be a cop, and a minor celebrity, in Fairview Heights.

Ryan Creasy was all smiles as he tried on a tactical vest with help from Fairview Heights Detective Ben Hester. - Derik Holtmann/BND


Creasy was as eager as any new officer on the job. He checked the lights and sirens of the squad car, and got in with his partner for the day, Fairview Heights Police Chief Nick Gailius. Creasy waved through the passenger window -- "Bye ma! Bye dad!" -- and turned to Gailius.

"Let's go!"

Their first stop was the Fairview Heights Police Department, so "Officer Creasy" could see the station and learn about police work. Fairview Heights Detective Ben Hester showed Creasy how to lift fingerprints, put on tactical gear and do criminal history searches.

Creasy hooked on handcuffs and donned a new cap, police blue with the words "Friend of FHPD" on the front and his name on the back. Gailius also paid out of pocket for a dog tag for Creasy's golden retriever sidekick, Rusty.

Creasy also got to meet Mayor Gail Mitchell.

On the road, Creasy was ready to lay down the law -- starting with his father.Creasy said he wanted to check up on Dennis Creasy, who often forgets to buckle up. Creasy didn't get to cuff his dad, but he arrested a woman who ran a stop sign at the mall in a staged event with the help of Officer Kurt Schutz.

It was Creasy's first and only day as a cop, but he clearly sides with police officers over firefighters.He saw a trip to the Fairview Fire Department as more of a detour. He took a quick glance at some fire trucks and declined to try on fire gear.

"Have to get back to work now," Creasy said.

Gailius joked to a Fairview firefighter, "He knows where the real work's done."

"Officer Creasy" was at ease everywhere he went as cop-for-a-day."Socially, he's wonderful and he gets along very well with people," said his mother, Cheryl Creasy.

Ryan Creasy has a nonhereditary genetic disease, Trisomy 21, but is high-functioning and generally healthy, Cheryl Creasy said. The mutation in the 21st chromosome -- he has three chromosomes instead of two -- causes mental retardation and physical characteristics typical to those with Down syndrome.

At first glance, Cheryl Creasy said her son might look like a teen, but he's the older brother to four sisters. Ryan Creasy spends most of his time working with his dad, who owns a sign production company. His mom is a vice president at Memorial Hospital. His biggest challenge is inarticulate speech.

"Sometimes he gets excited and you can't understand what he says," Cheryl Creasy said. But Ryan Creasy will tell you what he's thinking.

"Ryan is a very, very strong Christian," Cheryl Creasy said. "He probably talks to people more about his faith than we do, puts the rest of us to shame. He tells people not to cuss. If you're not doing something right, he'll tell ya."  Ryan Creasy is also devoted to his family.

He was invited to be cop-for-a-day at a Fairview Heights Rotary Club fundraiser he attended with his mom and dad. The fundraiser was for Miracle League, a program that provides sporting activities for persons with special needs. When the Creasy family moved to the metro-east three years ago, Miracle League organizer Brenda Wagner, manager of the Bank of Edwardsville in O'Fallon, helped the family connect with others.
At the March fundraiser, Ryan Creasy bid to meet a police dog, but he lost. Fairview Heights Ward 5 Alderwoman Sandy Baldwin saw how disappointed Ryan Creasy was and told Wagner and Gailius. From there, the cop-for-a-day event evolved.  Baldwin said she's happy with how things turned out. "This is a memory he's going to have forever."


May 5, 2011

Amazing Mothers

With Mother’s Day right around the corner I thought it would be fun to share about an amazing woman and mother that I am blessed to call my friend.

It was a lazy Sunday after noon and I was watching the  Discovery Channel and the show coming up next was Titled “Our 27 kids”. Hello! How could you not be intrigued? The story was about John and Jeanette Murphy, a couple who adopted 23 children with special needs.

As I watched these people tell their story I was in absolute wonderment.  I have witnessed first had the obstacles and struggles that came with 1 child that has special needs and these people were caring for 17 at once! Real life super heros!


I decided that I wanted to write them a letter and let them know how emotionally touched I was by their story. That was almost four years ago, and today I am proud to say they are my friends and I care for them like family. John and Jeanette Murphy are amazing people and they have raised some pretty amazing and talented kids.  


When I think of incredible mothers (in addition to my own mom) I can’t help but think of Jeanette. Mothers with children that have a little “something extra” are brave and special people and I wish all of you a wonderful day filled with all of the things that make you smile.

May 1, 2011

Winner!

Drum roll please . . . .

I am happy to announce that Brenda Aguilar-Rangel is the winner of the $25 gift card to Toys R Us!

Thank you Brenda for becoming a fan of the Down Syndrome Connection Blog!

Brenda please send me your info so I can send you your prize! redbride05@a0l.com

Stay tuned ... I see more give-a-ways in your future.  =)

Apr 25, 2011

It's a give-a-way!!!

Yep - that is what I said ... a give-a-way!



One lucky winner will be randomly chosen to receive a $25 gift card to Toys R Us. The winner will be announced on Sunday May 1st.

You can enter to win 3 ways :

Simply enter a comment (or as many as you want) at the end of this post telling us your favorite thing about the Down Syndrome Connection
OR
Become a FOLLOWER of this blog by clicking FOLLOW THIS BLOG in the box to the right.
OR
Sign up to follow us by e-mail by simply entering your email address in the requested field to the right of the screen.

Winning couldn't be easier or more fun!

Good Luck!





Apr 20, 2011

New Stuff!

Notice anything DIFFERENT ?  The blog has gotten a little bit of a face lift - do you like it?  Some fun new features can be seen to the right of your screen.  Such as the SUBSCRIBE BY EMAIL - enter in your email address in the space provided and you will be emailed with new blog posts!  We also have a little something for Facebook users BECOME A FAN - show us your support and become a fan of the DSC blog!

We also have a Bowl-A-Rama Countdown - it will be here before you know it!  You really don't want to miss out on such a fun event. If you haven't participated in one before you are in for a real treat!

BOWL-A-RAMA 2011

When: Sunday, May 22, 2011
Where: Earl Anthony's Dublin Bowl
6750 Regional Street, Dublin
Cost: $10 per person. Includes 2 games and shoes (food is available for purchase at bowling alley).

ENTER OUR RAFFLE TO WIN AN IPAD2!

TICKETS ARE $20 EACH

This year we're not creating t-shirts or asking you to obtain sponsors via a web page (we're hoping you will help us with that during Buddy Walk), so we're raffling an IPAD2 to raise money. You can buy tickets at the event or buy them with here. You DO NOT have to bowl to join the raffle! Winner will be announced on Monday May 23, 2011.

Download Bowl-a-Rama Registration Form to get started. Registration cost is due by May 18, 2011.

For more information email board member Karen Lochner: lochnerk9591@yahoo.com.

Apr 12, 2011

Play Ball

One of my favorite things about spring is BASEBALL - Challengers Baseball that is …


Every year my husband and I look forward to spring so we can see our “kids” again. My husband coaches
the Rockies Challengers team for Concord and it is truly the highlight of our spring and kick off to summer!

Challengers Baseball has a league in just about every county.  It is a wonderful program set up for children with special needs to be able to play baseball.  Challengers accepts any child age 5 and up to join.  Each child has their own level of ability but we make sure that everyone plays, everyone wins, and everyone has fun! 
We have been doing baseball with Challengers for 6 years now, and we have made some wonderful friends. If you think you or your child might enjoy coming out side and enjoying the spring air and some fun with us I encourage you sign up!



If you are interested or would like more information please contact me : redbride05@aol.com



Feb 16, 2011

Biggest win of all

Technically, the St. Peter's Panthers didn't win a game. But in the grand scheme, this senior boys high school basketball team is more than a champion.


In a season that will forever be remembered for what happened beyond the boxscore, the Panthers have nothing to be ashamed about and everything to be proud of.
And Chris Ironside's bright smile stretches across the county today because of it.

The campaign started with question marks for the Panthers, who didn't have a coach, and thus, were in danger of not having a season.

But in came Lee Rogers and Norm Susil, the former a teacher at the school, the latter an outside volunteer. They stepped in to coach the team, and effectively saved the season.

Little did they know, at the time, that their first season at the helm would be so special — a lesson in life's small wonders.

Chris has Down syndrome.

As the Panthers so rightly recognized, he also has every right to be included.

So the 16-year-old, who lives and breathes hoops, joined the Panthers squad as a helper upon the suggestion of Erin O'Brien, a special needs teacher at the south-end high school.
And without question, Chris was their star from the opening-day tip-off, a personal boost and a rallying point for everyone involved.

The Panthers included him in every game, every practice, every conversation. Everything.

Just like everyone else, Chris arrived at the gym at 6:30 a.m. for practices on Mondays and Wednesdays.

The team even centred a drill — The Chris Drill — around their enthusiastic teammate.

Chris filled water bottles during games. He cheered wildly for his teammates on the court.

"Anything they're doing, they've included him. More than just on the court," said Rogers, noting many of the team's players have known their friend and teammate for years, having grown up with him at neighbouring Pope John Paul II Catholic School.

Chris was a big part of the team all season long, despite never seeing any game action.

That changed last Thursday when Rogers tapped the young athlete on the shoulder during the Panthers' final regular-season home game against the Innisdale Invaders and told him to hit the hardcourt.
The idea to give Chris playing time in a league game came not only from the coaching staff, but also the players.

"He was so excited," Rogers said. "Really, I can go in?"

Both teams slowed the pace, the referees put their whistles away for a few minutes, the crowd — including proud mom, Laura, as well as Chris' grandfather — threw their unwavering support behind him.

Chris, a free-throw specialist and genuine crowd-pleaser, nailed three baskets from the foul line.

"He was so excited, he could barely contain himself," Rogers said. "And (everyone else on the court) was pumped they could be a part of it."

It might have been a small touch, but for those who were witness to it, the moment was remarkable — the kind you wish you could bottle.

"It was a moment they're going to remember for the rest of their lives," Rogers said. "And there's a definite lesson for the students involved.

"They have taken a lot away from it."

The Panthers were ousted from the playoffs on Monday afternoon, but not before giving Chris another chance to shine in the limelight.

He enjoyed a few more minutes of game action against the St. Joseph's Jaguars, who, like the Invaders, were equally accommodating, and just as excited.

Again, Chris scored a few more baskets.
Again, the crowd roared.

Again, Chris was the man of the hour.

"He was working his magic," Rogers said. "It was a great way to end the season."

It was a season that may not have come with a win, but it certainly was championship calibre.

Chris Ironside would surely agree.

Feb 2, 2011

There is an App for that ....

It is amazing what technology has been able to accomplish and the many luxuries that it has offered.  With the popularity of the iPhone and iPad there are so many people out there able to connect and get information quickly and efficiently.

I was overjoyed to discover that NO ONE has been left out in the development of their applications - and I just had to share these with you!

Here are few a applications that are fun and stimulating for kids with special needs (they are all FREE unless there is a price listed):

Sights : I love fireworks
            i Beams-lite

Sounds : i-horn
              vocal-zoo
              magic piano

Art :  Doodle Kids
         clicky sticky (Just.99)
        
Just for Fun : fart piano (self-explanatory and guaranteed giggles!)

Communication & Speech : dragon dictation (more for older kids, and adults)
                                          i communicate ($49.99)

                                          artik pix ($29.99)

                                         Proloquo2Go ($189.99 great for a assistive communication device)


Master List of iPad Apps for Special Education


Here is a great list of apps compiled by a school speech language pathologist, Eric Sailers. Many of the apps are for iPhones or iPods too.  Master List

I hope this information is helpful to you, but if you are already experienced with any of these applications or others I would love to hear your feed back on them!


Jan 14, 2011

Enjoying the small things



I hope everyone has been enjoying the New Year so far.  It was this time last year that I came across a blog of someone that I have grown to admire for so many reasons.  I am always on the net looking for other creative photographers to learn from and I don’t believe that it was any accident that I stumbled on Kelle Hampton - Enjoying The Small Things

When I first started to read her blog she was expecting her second baby girl.  She was completely unaware that the sweet baby she was carrying had Down Syndrome.  Kelle writes about Nella's birth story with so much raw emotion that I must have read it several times over to make sure I didn’t miss any detail she was trying to describe.  I wept several times over.

It has been a year since little miss Nella has blessed the lives of her family, and in celebration Kelle has created the ONEder fund. Once again this incredibly creative moma has produced something beautiful and I wanted to share it with you …..




Click here if you cannot see the video = One Year Birthday