Today’s Quote

“Whatever we possess becomes of double value when we have the opportunity of sharing it with others.” —Audre Lorde (poet).

Jun 22, 2011

Music therapy


What is music therapy?


Music therapy uses music as a powerful tool to create positive behavior changes.  Music therapy can enhance development in areas such as social/emotional, cognitive/academic and fine/gross motor skills. Music interventions are chosen specifically to meet individual developmental goals such as improving hand/eye coordination or increasing verbal skills
 
How can music therapy help a child who has Down syndrome?


Music therapy can be powerful in the life of a child who has DS. Music therapy goals often overlap and reinforce skill areas which are being addressed during the child's other therapies.  The use of music and rhythm can energize and organize a child's environment and encourage the child to participate. Music may also be used to relax a child when an environment becomes over stimulating.


If you would like to learn more about Music Therapy at the DSC be sure to contact them.

Down Syndrome Connection of the Bay Area

101-J Town and Country Drive Danville, CA 94526
Phone: 925-362-8660

Jun 9, 2011

The first model agency representing people with Down syndrome has been launched to coincide with World Down Syndrome Day. 

Some 20 people were selected, aged five to 33, after experts in the business rated their self-confidence in front of the camera. They will be available for photo shoots, advertising, catalogues and catwalk shows as part of the I'm I'm able 2 Model venture, and will be paid similar fees to other models.

Sheila Campbell, chief executive of the Down Syndrome Centre, said people with the disability needed to be better represented.

"For many of us, the experience of interacting with a person with Down syndrome has been increasingly normalised in recent times," Ms Campbell said.

"They are active contributors to communities on many levels and I'm able 2 Model will now provide a platform for them to be portrayed alongside their peers in media representation."

Ireland has one of the highest rates of people with the disability at one in every 500 births, as opposed to one in 1,000 in countries such as the US, Spain and Norway.

The company will be operated in conjunction with 1st Option Model Management, based in central Dublin and headed by Jules Fallon. Ms Fallon said she did not hesitate in getting involved in the project.

"Children with special needs such as Down syndrome have dreams and aspirations just like the rest of us, as do their parents," Ms Fallon said.

"Society no longer has a one-size-fits-all mentality so it's time we started to celebrate that people come in all different shapes, sizes and abilities.

"We are very excited about this project and are looking forward to opening new doors and revenue streams for people with Down syndrome."

Ms Campbell said they have not yet received any bookings but she is confident of business.

May 23, 2011

THE 2011 BOWLARAMA

THANK YOU TO EVERYONE WHO CAME OUT TO EARL ANTHONY’S DUBLIN BOWL FOR THE 2011 BOWLARAMA AND TO THOSE THAT COULDN’T MAKE IT AND PURCHASED RAFFLE TICKETS!

WE NET $3000 ON THE IPAD RAFFLE AND FOR THAT WE ARE TRULY GRATEFUL. AGAIN THANKS TO THE BOARD AND STAFF FOR DONATING THE IPAD.



CONGRATULATIONS TO DONNA CRAWFORD (TJ’S MOM) FOR HAVING THE LUCKY RAFFLE TICKET



IF ANYONE HAS PHOTOS FROM THE DAY… PLEASE SEND THEM TO ME AS AN ATTACHMENT TO AN EMAIL FOR THE NEWSLETTER!



THANK YOU AGAIN!

May 17, 2011

cop-for-a-day

Ryan Creasy, 33, always wanted to be a law enforcement officer like his idol, "Walker, Texas Ranger."
Creasy, who has Down syndrome, stays home with his parents and works in his dad's shop.  On Monday, he left his O'Fallon home and learned what it felt like to be a cop, and a minor celebrity, in Fairview Heights.

Ryan Creasy was all smiles as he tried on a tactical vest with help from Fairview Heights Detective Ben Hester. - Derik Holtmann/BND


Creasy was as eager as any new officer on the job. He checked the lights and sirens of the squad car, and got in with his partner for the day, Fairview Heights Police Chief Nick Gailius. Creasy waved through the passenger window -- "Bye ma! Bye dad!" -- and turned to Gailius.

"Let's go!"

Their first stop was the Fairview Heights Police Department, so "Officer Creasy" could see the station and learn about police work. Fairview Heights Detective Ben Hester showed Creasy how to lift fingerprints, put on tactical gear and do criminal history searches.

Creasy hooked on handcuffs and donned a new cap, police blue with the words "Friend of FHPD" on the front and his name on the back. Gailius also paid out of pocket for a dog tag for Creasy's golden retriever sidekick, Rusty.

Creasy also got to meet Mayor Gail Mitchell.

On the road, Creasy was ready to lay down the law -- starting with his father.Creasy said he wanted to check up on Dennis Creasy, who often forgets to buckle up. Creasy didn't get to cuff his dad, but he arrested a woman who ran a stop sign at the mall in a staged event with the help of Officer Kurt Schutz.

It was Creasy's first and only day as a cop, but he clearly sides with police officers over firefighters.He saw a trip to the Fairview Fire Department as more of a detour. He took a quick glance at some fire trucks and declined to try on fire gear.

"Have to get back to work now," Creasy said.

Gailius joked to a Fairview firefighter, "He knows where the real work's done."

"Officer Creasy" was at ease everywhere he went as cop-for-a-day."Socially, he's wonderful and he gets along very well with people," said his mother, Cheryl Creasy.

Ryan Creasy has a nonhereditary genetic disease, Trisomy 21, but is high-functioning and generally healthy, Cheryl Creasy said. The mutation in the 21st chromosome -- he has three chromosomes instead of two -- causes mental retardation and physical characteristics typical to those with Down syndrome.

At first glance, Cheryl Creasy said her son might look like a teen, but he's the older brother to four sisters. Ryan Creasy spends most of his time working with his dad, who owns a sign production company. His mom is a vice president at Memorial Hospital. His biggest challenge is inarticulate speech.

"Sometimes he gets excited and you can't understand what he says," Cheryl Creasy said. But Ryan Creasy will tell you what he's thinking.

"Ryan is a very, very strong Christian," Cheryl Creasy said. "He probably talks to people more about his faith than we do, puts the rest of us to shame. He tells people not to cuss. If you're not doing something right, he'll tell ya."  Ryan Creasy is also devoted to his family.

He was invited to be cop-for-a-day at a Fairview Heights Rotary Club fundraiser he attended with his mom and dad. The fundraiser was for Miracle League, a program that provides sporting activities for persons with special needs. When the Creasy family moved to the metro-east three years ago, Miracle League organizer Brenda Wagner, manager of the Bank of Edwardsville in O'Fallon, helped the family connect with others.
At the March fundraiser, Ryan Creasy bid to meet a police dog, but he lost. Fairview Heights Ward 5 Alderwoman Sandy Baldwin saw how disappointed Ryan Creasy was and told Wagner and Gailius. From there, the cop-for-a-day event evolved.  Baldwin said she's happy with how things turned out. "This is a memory he's going to have forever."


May 5, 2011

Amazing Mothers

With Mother’s Day right around the corner I thought it would be fun to share about an amazing woman and mother that I am blessed to call my friend.

It was a lazy Sunday after noon and I was watching the  Discovery Channel and the show coming up next was Titled “Our 27 kids”. Hello! How could you not be intrigued? The story was about John and Jeanette Murphy, a couple who adopted 23 children with special needs.

As I watched these people tell their story I was in absolute wonderment.  I have witnessed first had the obstacles and struggles that came with 1 child that has special needs and these people were caring for 17 at once! Real life super heros!


I decided that I wanted to write them a letter and let them know how emotionally touched I was by their story. That was almost four years ago, and today I am proud to say they are my friends and I care for them like family. John and Jeanette Murphy are amazing people and they have raised some pretty amazing and talented kids.  


When I think of incredible mothers (in addition to my own mom) I can’t help but think of Jeanette. Mothers with children that have a little “something extra” are brave and special people and I wish all of you a wonderful day filled with all of the things that make you smile.

May 1, 2011

Winner!

Drum roll please . . . .

I am happy to announce that Brenda Aguilar-Rangel is the winner of the $25 gift card to Toys R Us!

Thank you Brenda for becoming a fan of the Down Syndrome Connection Blog!

Brenda please send me your info so I can send you your prize! redbride05@a0l.com

Stay tuned ... I see more give-a-ways in your future.  =)